Tag Archive: hemophilia

Friday, April 17, 2015 6:00 am

World Hemophilia Day, April 17th

World Hemophilia Day is an international observance held annually on April 17 by the World Federation of Hemophilia (WFH). It is an awareness day for hemophilia and other inherited and acquired bleeding disorders. April 17 was chosen in honor of WFH founder Frank Schnabel, who was born on that day. World Hemophilia Day, first observed in 1989, is a day of celebration and appreciation of the vast number of family members and other individuals who provide care, services and support for those living with Hemophilia and other bleeding disorders. The World Federation of Hemophilia launched the 2015 theme “Building a Family of...

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Tuesday, February 03, 2015 11:30 am

Successful Transitions to Independence For Young Adults with Hemophilia

For young adults with hemophilia, making the transition from parent guided care with supervised prophylaxis treatment to independence is a crucially important time in the management of their disease. Without thorough planning and follow up, this transition period can lead to prophylaxis non-adherence, increased bleeding risk and joint damage progression. Finding your way with Hemophilia In order to make a successful transition to independence, it is necessary for young adult hemophiliacs to have a good understanding of : • their hemophilia and its uniqueness • their hemophilia treatment plan • the natural clinical consequence of their disease • the value of...

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